Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Run With Liam Rare Ministry Inc
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Liam Says...
Mar 29, 2020
4 years 5 months
4 years 5 months. We started this month with the fire banquet I like going because I get to see my fire family. Daddy got the geek award he will kill me for saying it but he’s so good with computers and of course his speech was about as many words as I can speak we seem to have that in common too. We had a good meal I ate my plate and some of daddy’s! I went to the farm this month bet you didn’t guess that and got to see my McKinley and Abigail we played outside while mummy got food for the house .. I love playing with them just hate we don’t stay longer . It’s like we get there and we have to leave as fast as I arrived. I have so much fun there. They have all sorts of neat things there but since it’s a working farm I can’t play with all the neat stuff but I at least get to see it and I get to play with the girls. That’s always the best part.
Mar 04, 2020
4 YEARS 4 MONTHS
4 years 4 months Well this month started a little rocky I decided I would roll down the back stairs! It scared me going to be honest but mummy cried more than me. She didn’t even fall and she cried ... grown ups make no sense!!! Daddy hasn’t felt good this month so I got to play with Kay even when he was home. It was nice because she plays outside with me and lets me play with my bugs. Daddy made me put my bug outside and I cried . Now that’s a real Reason to cry mummy!!! Having to give my bug back to the outdoors ! He was my friend and daddy made me let him go! I wasn’t really happy about it.
Jan 29, 2020
4 years 3 months
Well this month started off a little different it’s a New Year and I’m going to be an Uncle . Mummy and I drove to North Carolina for Sissy to have her baby. It was a lot of me playing with their new German Shepard and waiting around . I loved playing with the puppy!!! We went to the children’s museum I had a blast I played with all kinds of things I played in a fitness area it was a total blast and then went to a little grocery store section I had a nice little cart and was able to get groceries and put them on the belt but then daddy made me put them all up ... so weird at the store I take them home. I went to a pizza section but when I opened a box a little girl slammed it and said NO so I moved to another section she didn’t play nice. Girls are mean!
Dec 30, 2019
4 years 2 months
Back to life .... I’m feeling better, mummy is better, daddy is working a lot to help pay for our trip back to Philly and I’m walking running practicing trying to get my running goal by March . I have to run 100 yards! They say it’s a whole football field think I got this! I run and run all the time let me at it!!!
Dec 03, 2019
4 years 1 month
We spent a lot of time traveling this month and I shared adventures from England and Scotland with my Aunties, uncles and cousins.. when we got home I had to get my 4 year old shots . It didn’t hurt I actually slept thru it. But the next day I was pretty miserable. I don’t want to eat , sleeping is hard my legs are feeling weird I keep kicking mummy, Ive had a fever for a few days I never run fever. My body temperature is normally 96.1 and I feel hot and cold and shiver. I am just miserable it’s made my nose run, coughing and I seriously just want to stay in my bed and play with my Paddington he makes me feel better.
Oct 30, 2019