Hi, I'm Liam and I have Kleefstra Syndrome. My daddy is a Fire Fighter for the City of Dickson and I love first responders.

Keefstra Awareness day is September 17th and we are asking people to wear purple for the day. It can be just a plain purple shirt or my mommy makes shirts for me which we sell to raise money for my therapy. My friends at Wash 37055 and Sweet Charlotte supported me last year by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. Last year the Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. This year the Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA will all be wearing purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We have applied for a grant to purchase an out-building but will need help finishing it out, with both materials as well as volunteers to help with the construction.

The funniest thing I learned so far is that Marines, Army and Air Force love to have names for each other. Sissy and Bubba taught me that Mr Greg would rather be called “Chair Force” so.

Mummy took me to childrens and they took a picture of my bum with an xray machine to make sure it wasn’t broken.

This month has been a little chaotic.. woke up and Mummy and Daddy were not here.. mummy said she had to take daddy to doctor but I didn’t know that mean I was going to be alone well with my sissy Joy.. not that it matters b/c she is a grown up

May was eventful Daddy, Mummy and me all had to be in hospital for a day stuff, Daddy broke his shoulder, I had to get a scope and tubes again and Mummy had to get a BIG kidneys stone removed from her . I had special olympics, Bowling with friends, horse session ended, School is out for summer and surprise visits from friends.. But seems our life is always a mystery and always something to be surprised with..

Thursday is Kleefstra reunion pack up and head to South Carolina day to see all my Kleefstra Brothers and Sisters.