Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

Was eating dinner and asked mummy to eat and she said she already ate a tortilla and I said “Tortilla “ and mummy went crazy and made me go tell daddy tortilla not sure why that was that exciting but I got excited bc she was excited I say tortilla in sign language allllll the time and they never ever get that excited but the one day I say it with my voice she almost cries!

we are going to the STATE CAPITOL in Tennessee to talk to Mary Littleton our state Rep and some other people to try to get help for our insurance to pay for my therapy.

for me it means well EXTREME WORKOUT.. CrossFit for kids with disabilities Napa

Kleefstra awareness day, my school, Charlotte Elementary and Centennial Elementary as well as White Bluff elementary all were purple for me !!

The funniest thing I learned so far is that Marines, Army and Air Force love to have names for each other. Sissy and Bubba taught me that Mr Greg would rather be called “Chair Force” so.