Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Run With Liam Rare Ministry Inc
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Monthly updates
Dec 30, 2019
4 years 2 months
Back to life .... I’m feeling better, mummy is better, daddy is working a lot to help pay for our trip back to Philly and I’m walking running practicing trying to get my running goal by March . I have to run 100 yards! They say it’s a whole football field think I got this! I run and run all the time let me at it!!!
Dec 03, 2019
4 years 1 month
We spent a lot of time traveling this month and I shared adventures from England and Scotland with my Aunties, uncles and cousins.. when we got home I had to get my 4 year old shots . It didn’t hurt I actually slept thru it. But the next day I was pretty miserable. I don’t want to eat , sleeping is hard my legs are feeling weird I keep kicking mummy, Ive had a fever for a few days I never run fever. My body temperature is normally 96.1 and I feel hot and cold and shiver. I am just miserable it’s made my nose run, coughing and I seriously just want to stay in my bed and play with my Paddington he makes me feel better.
Oct 30, 2019
4 years
So I’m 4. Doesn’t that mean I don’t have to be kissed so much since I’m a bigger boy and not a baby???? We got dressed and daddy left for his test and mummy and I went with my Auntie Anne from London to Kew Gardens . We walked around I played with geese (English Geese aren’t mean like American Geese). They are pretty laid back and chill . We went over to a kid play area and I got very brave and tried everything. I wanted inside the flower but I didn’t let mummy put me up in it and I wasn’t quite big enough to climb inside .
Sep 30, 2019
3 years and 11 months
I am 3 years and 11 month We still go to Ginger and Spice to eat a few times a week I think I’m like their #1 customer I pretty much rule the place so I think. I’m going to make sushi like Cim one day . I love my cooking game and I make sushi on it so I know I will learn and it will be great!!!