Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Rare Ministry
Run With Liam Rare Ministry Inc.
Visit the ministry website to learn more about awareness, support, and ways to run with Liam’s rare journey.
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Monthly updates
Mar 03, 2019
3 years and 4 months
I am 3 years and 4 months my big sister got married!!!! I saw my other big sissy Kaytlynn and her new boyfriend Grizzly too. I now have a big brother and he is totally awesome he throws me in the air and plays with me all the time. He’s really great he makes me laugh plays hide and seek and chases me. My sister did good on this one. The wedding was outside at a really neat ranch it was awesome!!!
Feb 03, 2019
3 years and 3 months
I am 3 years and 3 months .... 2019 well I had to start it with a bang!!! A friend in my class was going to give me a hug and I lost my balance fell and hit my eye on the table and well that day ended in the ER .Mummy cleaned my face and the blood off my hands but I hated them touching my eye. They put lidocaine on it and we waited a very long time it seemed forever I just really wanted to be home. Watched loads of videos on daddy phone.
Dec 30, 2018
3 years and 2 months
I am 3 years and 2 months. Wow December was crazy busy . Christmas parties... to me it is just time for me to eat loads of cookies even though I love food, cookies are great! I have been in school now since November of course I had thanksgiving break to recover from all the germs and now Christmas break so haven’t really had a long time in school but it is ok.
Dec 01, 2018
3 years and 1 month
I am 3 years 1 month. This month was full of first!!! Daddy & Mummy were so proud of me. We had my birthday party in Arkansas and all of my family came it was great!!! I had all my Great Aunts, Aunts and cousins at my Aunt Teen Teens. We missed a few people but it was so much fun. They got me a really neat airplane cake and I got to play with the airplane on top although I tried to pull off the cake and they kept saying no and then they gave to me sooo confusing yes or no !!!