Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Rare Ministry
Run With Liam Rare Ministry Inc.
Visit the ministry website to learn more about awareness, support, and ways to run with Liam’s rare journey.
Recent Stories
Monthly updates
Nov 02, 2018
3 years
I am 3.... my last month being two was eventful to say the least!! I had a play date with my new friend Catherine !!! I was grumpy that day but loved to have a friend. We went to the pumpkin patch (Sweet-Berry Farm). It was neat . We walked around had snacks, picked flowers , and rode the train. I did the bouncing thing toward the end but wasn’t too sure about it.
Oct 02, 2018
2 years and 11 months
I am 2 years and 11 months my last month to be two! All the adults say man I’m getting old on their birthdays so I guess I will say I’m getting old too!!! I am wearing a 5-6 in jeans now they are a little big but they have the pull straps so they fit I am really growing and am extremely strong!!! I got this really neat new bracelet with trains on it that has my name and daddy and mummy’s phone numbers so if I get lost or wonder off but I am normally pretty good at staying with them. Mummy said it keeps me safe!!
Aug 31, 2018
2 years and 10 months
I am 2 years and 10 months I have been to 15 states and 3 countries today marks my last day of my holiday in the fabulous 🇬🇧 United Kingdom. I’ve enjoyed England 🏴 and Wales 🏴 this trip. We’ve seen so many friends / family and have enjoyed spending time with them . I’ve been to the London Zoo, Osterley park, Kew Gardens , Hampton’s Court, enjoyed walking the beautiful, but fast paced city of London, made new friends at the local Brentford Pub,I rode a double decker bus and sat on the top and watched the cars below.
Aug 01, 2018
2 years and 9 months
I am 2 years and 9 months. I can climb and it’s great! I have learned to climb on the kitchen table , get M&M’s, put the lid back on and not get caught! Well kind of...... they normally catch me and “think wow he’s so cute I will video this moment”. I just embrace the moment considering one day it will be a NO NO probably sooner than later.