Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Rare Ministry
Run With Liam Rare Ministry Inc.
Visit the ministry website to learn more about awareness, support, and ways to run with Liam’s rare journey.
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Monthly updates
Jan 04, 2023
Napa Mini intensive Day 1
She got a little bolster I was excited and mummy called it a baby and so I got to do easy one once and got the bigger one and that was hard! Mom let me have an easy day please .
Dec 30, 2022
7 Year 2 Months
7 years 2 months Today I loved school got to wear my Christmas Buc-ee and everyone was dress super cool they even let me listen to Christmas music love Christmas !!!
Nov 30, 2022
7 Years 1 Month
7 wow! I’m getting old! I’m tall for sure I know I have doctor appt soon that will tell us how big I am but mummy says I wear a size 9 / 10 and I’m 7 if that tells you anything. Size 2/3 shoe /boot I have inserts to help my feet since I’m getting bigger and having issues walking with my feet going somewhat FLAT guess my weight . I’m 65 lbs mummy can’t pick me up as much anymore .
Oct 30, 2022
6 years 12 months
Next thing I know I got a BUC-EE Staff shirt like a real shirt like all of them have!! I am so excited. AS soon as we got to the truck I made mummy put it on my Buc-ee that I left in the truck … and when we got home I took a bath and now I have it on!! So excited I made new friends, saw my best friend Buc-ee and got a new shirt just like my new friends