Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
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Liam Says...
Jul 30, 2022
6 Year 9 Months
6 years 9 months This has been a pretty typical boring month. It is warm outside but I don’t complain b/c after going to TEXAS this is just Warm not hot! I have had group music therapy all month and honestly have loved it!!!!! I made some new friends and it was so nice to get to see Kate and Anna Laura more than once a week. Love my miss Kate!! I have been getting more sounds Miss Hillary and Mummy are so excited!! I can now make the sound to ask for Water .. I say WAAA but mummy knows I mean Water. I can say EEEEAAA T ..............
Jun 30, 2022
6 years 8 months
We are in Texas and it’s HOT can’t believe we lived here! But I got to go swimming on my first day here so that did help. I saw Auntie Christy and Uncle Matt and the boys were playing basketball in the pool I kept helping them with the ball that kept flying out of the pool and throwing to them . They were splashing and it was the best. Madison took me into the pool and that was great fun too I even pushed her in.
Jun 22, 2022
6 years 7 months
Everyone is well finally… time for me to fly…. Haha. We went to South Carolina to a BIG Kleefstra Reunion. Mummy said a lot of my Kleefstra brothers and sisters will be here. Well whew… lots of people… outside …. Ok yes very cool weather was great but seriously mummy outside for hours NO game really I seriously have to PLAY and mingle and do what you are good at??? NOPE not having it.
