Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Run With Liam Rare Ministry Inc
Visit Ministry WebsiteRead My Stories
Liam Says...
Oct 30, 2019
4 years
So I’m 4. Doesn’t that mean I don’t have to be kissed so much since I’m a bigger boy and not a baby???? We got dressed and daddy left for his test and mummy and I went with my Auntie Anne from London to Kew Gardens . We walked around I played with geese (English Geese aren’t mean like American Geese). They are pretty laid back and chill . We went over to a kid play area and I got very brave and tried everything. I wanted inside the flower but I didn’t let mummy put me up in it and I wasn’t quite big enough to climb inside .
Sep 30, 2019
3 years and 11 months
I am 3 years and 11 month We still go to Ginger and Spice to eat a few times a week I think I’m like their #1 customer I pretty much rule the place so I think. I’m going to make sushi like Cim one day . I love my cooking game and I make sushi on it so I know I will learn and it will be great!!!
Aug 31, 2019
3 years and 10 months
I am 3 years and 10 months Mummy said we were going to Morgan’s I looked at her and got excited bc I thought when she had my swim suit we were going to the pool but nope we went in the car and I wasn’t really happy. I took a little nap and pouted a little which I normally didn’t pout much but I am getting the pouting sad puppy eyes down. (It works on mummy).
Aug 01, 2019
3 years and 9 months
I am 3 years and 9 months My Aunt Jamie has been staying with us still . She is still hurting but I love the time I have with her. She’s become one of my sweet cuddle people. My daddy was also sick this month but he is tough so I haven’t taken it easy on him like I have my Auntie J. Daddy can handle it and if I go easy on him he will think I have to always be easy so I push him so he stays active and well. I think he went back to work to have a break. I am cheeky!!!!! I keep everyone laughing .
Jun 30, 2019
3 years and 8 months
I am 3 years and 8 months my cousins come to play with me and see us for a few days. I love to have kids around but I hate I can’t communicate like they can and I don’t get to swim with them bc of my ear tubes. Mummy trying to find some ear plugs . I miss the pool. Baby Eve likes me and laughs at me. She loves my toys .
Jun 02, 2019