Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Run With Liam Rare Ministry Inc
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Monthly updates
Jul 01, 2021
5 Years 8 Months
5 Year 8 month Wakey wakey they say!!! Let’s go have fun they say…. Him mummy and daddy fun means I’m going to pee my pants I mean really!!!! So off we go out of my nice comfort zone and back into the green mountains to Tennessee!!!! ..........
May 30, 2021
5 Years 7 Months
5 years 7 months We had to go for my Great uncle and cousins funeral! Not so sure what that is but a lot of people where there crying and I decided I’d look for bugs! Then I walked around giving hugs to try to make people smile! I love making people smile! We went back to my other cousins house and she had made dinner for us to eat before we had to head back! Daddy & Mummy had lots of chores before they both had to work! My sister and aunt came over and I got to play with my cousins while we gave my sister a cake for her birthday. .......
Apr 30, 2021
5 YEARS 6 MONTHS
I got to go to the park in round rock and play on my favorite slide and see Denise!! Was excited for her to cut my hair!!! I love her!!!!! She gives me combs and I help her . We went to eat with Uncle Traye , Aunt Mary and Bree!! I love tortillas !!! And beans!!!! After we ate we went outside and uncle Traye for some reason makes me squeak. I don’t know why. I can’t do it? Mummy can’t do it but when he touches my nose or tummy I squeak! He has some magic touch he makes me make weird noises! I thought it was soooo funny! He also throws me around and it’s a lot of fun. I love my Uncle and Auntie and cousins
Mar 30, 2021
5 years 5 Months
We left for Texas haven’t been there in a long time everyone said I was sooo big now. Guess I am bigger I can get things mummy tried to put up easier bc I can finally reach.