Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Run With Liam Rare Ministry Inc
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Monthly updates
Sep 01, 2020
4 Years 10 Months
4 years 10 months This month started off with us being in Texas trying to get our home here sold so we can tie up loose ends as mummy says. It’s been kind of strange having an empty house but I live to run around and stomp. I’m pretty mischievous and love to get into the cabinets to find my games charging mummy can’t keep me out I and so tall now and I know how to move my stools to climb and get what I want .
Aug 01, 2020
4 Years 9 months
4 years 9 months I am growing but not eating as much since we are still moving . My house in Texas is empty . I have been sleeping on the recliner and I will be honest I love love love it!!! I sleep all night long and it’s so comfy mummy wouldn’t let me when my bed was here but my bed is too small I’m a big boy I need a big bed!!!!!! Hello Daddy you made mummy a bed because he gets to enjoy it so guess what I will sleep in their bed until I get mine.
Jul 01, 2020
4 YEARS 8 MONTHS
4 years 8 months So this month is weird. I have no toys, clothes , furniture , oh and no BED but it’s ok now I’m allowed to sleep in the recliner!!! I’ve had some screen time I’m normally not allowed bc daddy and mummy are trying to load , drive, move and pack. So glad I’m 4 and I don’t have to do the hard stuff. But I do love helping with power tools and helping daddy with the dolly. I even help daddy load and close the trailer . I’m soo big now. Mummy and I stayed here and we have no stove or refrigerator so we have as she says been roughing it. Grandma brought us a mini fridge and I got to see my uncle steestee I love him he’s fun! I’ve worked with mummy a lot cleaning and at her office well I don’t work but I am there and just behave unless she isn’t looking then I want to make copies haha. I don’t hurt anything just like to watch the paper come out it’s sooo funny!!! I really like David he plays with me and does fist bump and walks around with me outside he is super cool.
Jun 01, 2020
4 years 7 months
4 years 7 months I am 4 years and 7 months and am making new progress daily so they say it’s progress to me I’m just figuring out how to do things I want to do and when they won’t do it or get it I will figure it out just you wait. My game is my favorite thing ever and why They won’t let me play it at home is frustrating but I have figured out if I get bigger boxes or stools I can reach. It’s easy to push a box or tote thru the house to the hiding place that isn’t a hiding place bc I know they are there!!!! I took my little stool and put it on the scale and I could almost reach. The step stool tho is definitely the way to go and I am not scared to climb up and down it now.