Run With Liam

Updates from Liam’s world.

Follow Liam and family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

Liam

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Monthly updates

Run With Liam blog photo

Sep 01, 2025

9 years 9 months

Got my room finally done so my big Buc-ee could come upstairs.. now all of my Buc-ees have a place to sit and aren’t all over my floor and my big one is right by my bed where I wanted him!!!!

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Run With Liam blog photo

Jun 30, 2025

9 years 7 months

This bill is supposed to help me with therapy so I guess it is a good thing and it is nice that the world is learning or at least Tennessee knows what kLEEFSTRA SYNDROME IS.. and knows it is not Autism ..

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Run With Liam blog photo

Jun 02, 2025

9 years 6 months

I was also working away in the room looking up paddington locations and eating chocolate.. But Grandpa Caught me!! Aren’t grandparents supposed to give you more chocolate … he told on me … here comes daddy and I had not had time to clean up all the wrappers from all the chocolate I got into.

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