Run With Liam
Updates from Liam’s world.
Follow Liam and family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Recent Stories
Monthly updates
Dec 31, 2024
9 years 1 month
Was eating dinner and asked mummy to eat and she said she already ate a tortilla and I said “Tortilla “ and mummy went crazy and made me go tell daddy tortilla not sure why that was that exciting but I got excited bc she was excited I say tortilla in sign language allllll the time and they never ever get that excited but the one day I say it with my voice she almost cries!
Dec 01, 2024
9 YEARS
we are going to the STATE CAPITOL in Tennessee to talk to Mary Littleton our state Rep and some other people to try to get help for our insurance to pay for my therapy.
Oct 30, 2024
8 Years 12 months
for me it means well EXTREME WORKOUT.. CrossFit for kids with disabilities Napa
Oct 01, 2024
8 YEARS 11 MONTHS
Kleefstra awareness day, my school, Charlotte Elementary and Centennial Elementary as well as White Bluff elementary all were purple for me !!